Last Friday we saw a symptom management specialist to get the pain and nausea and whatnot under control. I’ve been following his medication guidelines since then and feeling somewhat better – less pain, still sometimes diarrhea/vomiting, interspersed with not being able to go at all. Waiting for follow up appointment to hopefully make things better. Able to walk a couple of blocks yesterday which was a big deal.
Meanwhile, saw a new radiation oncology specialist Wednesday. Tuesday my oncologist called to tell us that the CT of my head 1.5 weeks ago showed a tumour/lesion in the left side of the brain. It’s about 1 cm. I have an MRI Friday evening to see if there are any that the CT scan did not catch. Wednesday the rad onc recommended SBRT (cyber knife), which will zap the brain lesion as SBRT did in 2014 Fall for my lung lesions. I was then measured for a mask/form to wear while undergoing this session – I understand there is one session of high dose radiation – and had another planning CT scan with the form/mask on to help with aim. I don’t know how long the session lasts, but understand it is about an hour treatment. There are various side effects, short and long term (hello more nausea and fatigue), but overall this is a recommended treatment. We should find out next week when it is scheduled.
Due to this, I am back on a steroid due to swelling in the brain around the tumour. This may be partly why I’ve been up since 2:00 am. Also, worrying to me, I have to be again off Sutent for risk of bleed of the lesion, until sometime after the SBRT session, having only been able to resume Sutent for about a week since last July. Of course this makes me concerned about more growth in the hip bone, liver, lungs lesions and in the cancer in the bone marrow.
Luckily, things seem to be moving very quickly with this SBRT planning, so hopefully I’ll be through the radiation session(s) and back on systemic treatment pretty soon.