My blogging is weak. In my most recent post, called ‘Deja Vu’, I was trying to post from the hospital, to update and let folks know that once again I’d had a pain incident, like the one back in August>September, which had once again hospitalized me. This time, less nausea. So my hospital action consisted of getting my pain under control, and then figuring out which level of pain medication I’d need on an ongoing basis to keep things relatively under control. I was discharged this past Monday, and things seem to be indeed ‘under control’.
One effect of the pain medication is increased grogginess and dizziness. I’ve had to give up on early-morning appointments; taking my long-acting, increased pain meds at bedtime, I’ve had quite bleary, confused mornings where I’m not very well gripped in reality. So I’m less of an early bird, but still having training appointments and chiropractic help, thanks to the very helpful flexibility of my trainer and my chiropracter and her staff.
Another effect of reduced pain has been a much improved mood. I’ve also been making deliberate efforts to improve my mood, by actively engaging in things I typically enjoy, even when I wasn’t enjoying it in the moment. ‘Fake it till you make it’ has a place. It’s also improved my mood to recall: it’s November; it’s dark; this shall pass.
Another mood booster: Monday I had a CT scan just before being released from hospital. We picked up the report at the end of the week. It seems, to my non-medical reading at least, to indicate that so far, Sutent is still keeping things stable. No notable progression in any of the various tumour sites. So the new pain does not appear (again, at least to me) to be associated with more disease.
A final mood booster: visits with friends. This weekend featured visits with the Rachel/Gary team from Toronto, and Laura J from here. Lots of chats, catchups, visiting the War Museum for a splendid exhibit on women in WWI and WWII. Just the ticket. Upcoming this week are a bone scan Tuesday, more/other appointments including two support groups and Day Hospice, and an appointment Friday with my oncologist to discuss treatment plans based on the recent scans. Heading into this scramble with less pain and much improved outlook.
Oh, plus November: we’ll soon be done with it for another year.